Join the Movement — Share Strength, Amplify Hope
This September, the Duchenne community unites for Duchenne Awareness Month. After 30 years of remarkable progress, our commitment must be louder and stronger: now is the time to act, to educate, and to protect access to life-changing treatments.
Why Sharing Matters
Your experiences create change. Whether you are living with DMD, caring for someone, or supporting the cause, sharing your story this month helps others feel less alone and strengthens the fight for patient rights. Upload a video, photo, or written message to add your voice to our collective journey.
Why Sharing Matters
Cash's Story
Logan's Story
Stories of Strength
The Bafus Family
John John's Journey
Real Stories, Real Progress
Every journey with Duchenne is unique. Throughout Duchenne Awareness Month, read, watch, and listen to courageous stories from families living with DMD. Discover how scientific breakthroughs, advocacy, and community support are transforming lives—and fueling hope for tomorrow.
Connection. Hope. Progress.
Every journey with Duchenne is unique. Throughout Duchenne Awareness Month, read, watch, and listen to courageous stories from families living with DMD. Discover how scientific breakthroughs, advocacy, and community support are transforming lives—and fueling hope for tomorrow.
Elijah's Journey
Connor and Easton's Stories
Share Your Journey
Your experience with DMD can comfort, inform, and encourage others on a similar path. Upload a short video, photos, or written testimonial to add your story to our community and join the fight for patient access.
All videos, photos, and testimonials featured on this site are either publicly available or have been used with the express permission of their respective owners.
Every journey with Duchenne is unique. Throughout Duchenne Awareness Month, read, watch, and listen to courageous stories from families living with DMD. Discover how scientific breakthroughs, advocacy, and community support are transforming lives—and fueling hope for tomorrow.
The Urgency of Duchenne Awareness
Duchenne muscular dystrophy (DMD) is a rare genetic condition that results in progressive loss of muscle strength and function, primarily affecting boys. Caused by the lack of dystrophin—a vital muscle protein—DMD appears in early childhood and worsens over time, affecting not only mobility but also the heart and lungs. Raising awareness accelerates research, strengthens patient advocacy, and helps secure treatment access for families worldwide.